Wednesday, July 27, 2011

Long overdue!!

As always, things have been busy in our household and time seems to whiz by. Sumana had her sleep study earlier last week. Let me just say that the novelty of the 'thing' has long worn off. I had to DRAGGGG myself there, knowing that I wasn't going to get much sleep. Unfortunately, neither one of us got much sleep. Miss Amy got Sumana all hooked up to the sensors and was ready to turn out the lights right around 10:00, however, nature called and she had to unhook Sumana, let her 'do her thing' and then hook her up again, re-checking everything to make sure the wires were all working. It was almost 10:30 by the time we turned out the lights (about an hour later than her bedtime). Then at 1:30 a.m. we were up again, this time diarrhea was the culprit and then again at 5:45, (wake up call was at 6:15!!) UGH!!! She slept most of the way home, and I slept 4 hours once I got home. We'll know next week if they were able to get any profitable information from the study.

The later part of the week was Kids Kamp at LeTourneau. Sumana had a FANTASTIC time. Miss Emily was back again (she's been a counselor in training for 2 years, now she was promoted to THE counselor for Sumana's cabin). The heat was terrible and the wind was kicking up such big waves, the waterfront had to be closed. However, Sumana and Emily took to the slip and slide and had a blast. We borrowed an adult stroller for Sumana this year. She was rather mortified at using a 'stroller' so even though it was hot and there were a lot of hills, she hoofed it by herself all over the camp. She rarely used the stroller. (Maybe a little self-consciousness is good for her . . . it meant exercise in this case!!!)

This week we visited Great Grandma Williams at her beautiful new apartment and went to see Dr. Voter afterwards. Sumana's lungs continue to get stronger, in spite of her stinky attitude. I told the doctor that she 'grudgingly, but faithfully uses her cough assist machine.' Dr. Voter got Sumana to admit that the cough assist is helping her to feel better. Dr. Voter is awesome at use child psychology to its best advantage with Sumana. It's wonderful to see her help Sumana take responsibility for her overall health.

This week brings tests and doctors' appointments for ME, for once. Not that I'm proud of that, but it is strange to schedule MY appointments around the KIDS' schedules! I saw a neurologist Tuesday, my PA today, I have an EEG tomorrow, then an MRI and blood work on Friday. Woo-hoo! That's the way to get 'er done! They're trying to find an explanation for my speech issues and short term memory loss. They think it might be a delayed reaction from my rollover accident in February. The timing seems to fit, but that was over 5 months ago! Anyway, I follow up with the neurologist in a couple months. Hopefully things will resolve themselves as time goes on.


  1. What, what??? I had no idea you were having problems! Will be praying for you! A little embarrassment IS a great motivator! Glad it worked out well AND that she's taking some ownership of her health! I still struggle with getting one of mine to do that too! Hmmmm, actually, more than one of them! Miss you!!!

  2. Hi
    My name is Jenna and I came across your site. Sumana is an amazing courageous strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and I love it when people sign my guestbook.