Friday, July 31, 2009
Sumana is back in the swing of exercises and cough-assist practice. I'm going to 'put it in gear' . . . it's less than 4 weeks til surgery! This week she has a repeat sweat test, a follow up with the pulmonary doc, a pediatric eye check up AND she gets her new leg braces (all in ONE day!) It'll be nice to have all these appointments out of the way. She sees Dr. Sanders for her pre-op appointment a week from Monday. It's coming up quickly! Please pray with us that Sumana will work hard at her exercises this next month so she will be as strong as possible going into surgery.
Thursday, July 30, 2009
Wednesday, July 29, 2009
While she's been gone, I've enlisted Andrew's help to heave-ho a lot of her stuff. She's an even worse pack rat than me! It'll be a lot easier for her to find stuff she's looking for now. (Unless we 'heaved' it!!!)
On the van front, things have been coming together super fast! I got a phone call at 7:45 this morning informing me that Sumana is still eligible for SSI, but a couple more documents were needed. I'm hand delivering those items tomorrow morning and, as long as things are still a 'go' for the SSI, we go to close on the loan at 4:30. We'll have to see if things continue to come together smoothly. I'll keep you posted!
Monday, July 27, 2009
Saturday, July 25, 2009
On the way we called her neurosurgeon to run things by him. Thankfully, he said that even though she had hit her shunt site twice, it was very unlikely to have dislodged it. So, we made it to our local ER and had her checked out. Long story-short, she threw up again, had a CT scan and was released within 3 hours. The 'God-thing' is that the ER doc is also on staff at Strong and was able to consult her records from there. It was such a relief to have access to her info and scans without having to travel an hour. We're soooo thankful!
So, she needs to take it easy tomorrow and if she's feeling better by Monday noon-time, she can try going to camp. The hard part is that she can't do anything strenuous or anything that makes her nauseous or headache-y. I have a feeling she'll need to be in her wheelchair quite a bit. I have talked with her counselor already and she has been planning on helping Sumana with the different activities at camp anyway. Now, she may need to push Sumana around in the wheelchair for a day or two. Sigh . . . I'm tired of 'exciting' . . . I'm ready for some 'boring'!
Thursday, July 23, 2009
OK. I'm back with a quick re-cap of the week. Andrew had an ingrown toenail removed Tuesday at 8:15 morning (too early for both of us!). Then, I found out that Social Security needed income proof for Jeffrey, so I made copies and drove them to the Geneva office. Since we were in Geneva, we had a WONDERFUL visit with Aunt Ruth. She was moved from Strong to an acute rehab center. She was dressed, hair fixed and had just eaten a lot of her lunch! It was sooo good to see her improvement in just a week or so.
When we got home that day, I had a message from Social Services about taking a 3 year old boy for a few days. (Oh, that's right . . . THAT's where my week went!!!) Within a half hour, he was at our house. That night we celebrated my Grandma Dorman's 86th birthday. We actually sang Happy Birthday FOUR times! (other July and early August family b-days!) Nee-nee and Sumana helped blow out the candles FOUR times!!!
Wednesday, Gretchen had her work physical at 8 am! (too early for ME and the three year old!) I had a Stampin'Up! workshop that evening, so between prep and the actual event, that took up about 4 hours! Thursday morning we kept up the 8 am appointment schedule with dental cleanings for the oldest 3 kids. Then, Sumana, 'Neenee' and I hurried to PT. We spent the afternoon at LeTourneau while I gave swim tests.
We've had EVEN more going on than that, but I'm tired. I'm going to bed! Tomorrow is Gretchen's road test and I'll be helping a friend with her moving sale. Meanwhile, Greig and some of the staff and volunteers from Crosswinds are in New York City for a tech-y kind of conference. I think he was glad to leave this morning, after a crazy evening with the three year old!
On the 'van front' we're still waiting to hear about Sumana's SSI. I should be able to get some sort of indication tomorrow. The Cash for Clunkers starts tomorrow, so I'm curious to see if God has a new van in our future, or if we keep the Big Green Van! We appreciate your continued prayers for God's will in this area!
Monday, July 20, 2009
Sunday, July 19, 2009
It looks very much the same. So, my old Paychex building was 'on the way' back to the dealership so I slowed down to show Sumana where I used to work. That's when the bottom dropped out in our day. I pulled up behind a big truck at a T-intersection and then heard blaring car horns, heard a crash and then SAW a black convertible whiz up a bank and head up a privacy fence and stop ON its SIDE. I parked the van, grabbed my cell phone, dialed 911 and jumped out of the car in rapid form (recently certified Professional Rescuer in action!).
By the time I crossed the street, others were there helping the victims. They were all conscious and the convertible driver (a 300+ pound man) actually climbed OUT of his car! I took over bystander who had been at the 'other' car. It was an elderly couple (70-80s) and since I didn't notice anything immediate danger (other than being in the middle of a road!) I just talked to them and helped them gather their personal belongings that had flown all over. Thankfully, a doctor was in one of the passing cars, so she took over for me and I was happy to get out of there. We were DONE with our test drive!
I had so much adrenaline in my system that I couldn't remember where we actually needed to go (it has been 18 years!) I turned left, turned around and went back, then turned around and went the way I originally turned. UGH!!! Anyway, we got back late and we were late for everything else the rest of the day!
We checked out van colors for the Sedona (at a different dealership) and by that time, it was too late to visit Giana. Thankfully, we still had time for a Chinese buffet before we picked up Gretchen at the airport. Of course, I forgot about the construction at the airport, so we were late meeting Gretchen. That's the way the day went! I am soooo thankful for safety, though. Only God knows 'why' were perpetually late yesterday . . . but I'm sure He was keeping us safe through all of our 'adventures'. Thanks for putting up with all my rambling!
Friday, July 17, 2009
I've been suspecting the alternator for MONTHS and when I called Greig he reminded me he had recently replaced the battery. So, we were pretty sure it was 'toast' and we should have it towed. However, after being on the phone for 20 minutes with the motor club, I tried to start it again and IT DID! The customer service rep stayed with me on the phone as I drove a block, a 1/4 mile, a 1/2 mile, and finally up to 55 miles per hour and on the way home!! Woo-hoo!!! I asked her to cancel the tow and Sumana and I prayed all the way home! Just as we drove past our neighbors' house the red lights came on again and we coasted into our driveway.
Poor Sumana! She's been in more car accidents and mishaps with me in just 5 short years. When she talks about all of our 'stories' I'm sure people wonder how I still have my license or why Greig lets me drive our kids all over creation!!! LOL!
Well, tomorrow we're driving the big green van! We're test driving some more vehicles and looking at paint colors (of all things!) We're also planning on visiting our friend, Giana (whom we met in the PICU at Strong . . . I asked for prayer for her recently). Then, we're off to the airport to pick up Gretchen! Whew! The week flew by . . . I bet it did for her in Mexico, too!
Wednesday, July 15, 2009
Anyway, I said THAT to say THIS: Sumana doesn't 'do' PG-13 or anything remotely scarey, so she spent the morning with Great Grandma Williams. Sumana always complains that Andrew gets to have one-on-one time with Grandma, but not her! Well, she got her wish today! In addition to the endless chitchat, she also went to chair exercise class with Grandma. She used the balls and weights and tried a lot of the exercises. I guess one of the balls had princesses on it, so Sumana named ALL of the princesses for the class to hear.
As always, she was a hit with the older folks and was asked to come again. Sumana has a way of making friends wherever she goes! Grandma was having lunch with some friends at a local restaurant so when I met up with them Sumana got to meet MORE people!!
Tomorrow is PT and a day of cleaning with mom and Miss June. Later, Sumana's cousins are coming over for dinner and an evening visit. It should be a fun, tiring day!
Monday, July 13, 2009
Saturday, July 11, 2009
Now, a couple of 'ifs' remain as far actually bringing it home. One of the 'ifs' is that the cash for clunkers program will have to allow an improvement of 3 mpg from our Astro. Secondly, Sumana's disability income will have to stay intact. I got a letter today from Social Security saying that they want to verify that she is still eligible. This van is specifically for her use and progressing independence. (If I had been able to choose, it would have been more of an SUV-type!) I can't believe she wouldn't continue to be eligible, but I want to find that out BEFORE we get the van!
Anyway, we won't even be able to get the van for another couple of weeks. Please pray with us that God's will is accomplished. Everything has come together well so far, but we'd rather have a roadblock come up and stop us at this point if it's not in God's perfect plan.Well, Sumana and I got up at 4:30 this morning to take Gretchen to the airport. She flew out at 7 am for her week-long missions trip in Monterrey, Mexico. We had a couple of hours to wait til the Kia dealership opened so we went and visited Aunt Ruth again in the hospital. I wasn't sure if they'd let us visit (official visiting hours are 11-8). But, we walked right in and I said that we were there to help Aunt Ruth with her breakfast and they let us go right in!
She still doesn't have much of an appetite, so breakfast consisted of an Ensure milkshake. But, we helped encourage her to get most of it down before we left. I was really thankful that she was in a private room, because it was 7 am and we were laughing a lot! She's in such good spirits and is very alert . . . full of stories like usual. Today she told us about how 'things' were so different when she was Sumana's age. She and her younger sister were sent to a neighbor lady's house and didn't know anything was going on until a delivery man asked them how they liked their new baby brother (my grandfather!) I guess they didn't stay much longer with the neighbor . . . they wanted to get home and see their new surprise! How different times were, huh?? Today our kids not only know when a baby is coming, they often have pictures and know if it will be a sister or brother!
As an update on Giana . . . she is being treated for a staph infection. Poor little lady! At least they are able to treat her at home. I think her one year birthday is this week. Please pray that she'll be happy and healthy to celebrate!
Thursday, July 9, 2009
Monday, July 6, 2009
She also has an appointment in a couple weeks with Miss Christine to get fitted for new braces. Then, when we get to August, she has a new pre-op appointment with Dr. Sanders; a repeat sweat test, a pulmonary check up, and a dental check up to round things out. I'm anxious to get ALL of her appointments out of the way before her surgery. It makes for a busy summer, but at least she'll be as ready as possible for the surgery and the 6-week recovery.
And, by the way, our little friend Giana is HOME!! Her MRI was normal, so they've put her on antibiotics 'just in case'. Please remember to pray for this sweet little one. They still don't know what the fever and bloodwork questions were about. Praise God they're home!
Sunday, July 5, 2009
This week I need to make phone calls. Sumana's cough assist machine is ready when she is, so we need to schedule an appointment to learn how to use it. Also, I'm going to see if she can have her eyes checked this summer instead of trying to do it in October. (It probably won't work, though, because I think she has to wait a year for her insurance to cover it). I found out about a bummer on Thursday. Sumana's pre-op appointment has been 'bumped'. I don't know what that means. Because of the holiday, I haven't received a call back from Dr. Sanders' office. Hmmmm . . . is it postponed til later in the day??? is it cancelled for the day?? I'm pretty bummed that Dr. Sanders' office didn't let me know. I found out through Sumana's orthotic's office. Well, that's another phone call.
Sumana is back to PT twice this week. Yea! It's still a challenge for me to get her to do her exercises. It was so easy when we were on our school schedule' this summer doesn't seem to have any 'schedule'! UGH!!!
Saturday, July 4, 2009
I'll try to update more tomorrow night about Sumana. She's been a busy, happy girl!