Tuesday, October 20, 2009

No Rochester appointments til February!!

It's true! It's true!! No more trips to Rochester til February! Sumana saw Dr. Sanders yesterday and he's very pleased with her progress. He said he was going to ask his secretary to start working on scheduling Sumana's first lengthening for 4-5 months from now. Yea!!

So here's the scoop: she'll have a pre-op appointment in February to get up-to-date x-rays. Then she'll go in for surgery. Dr. Sanders says there will be 2 incisions at the adjustment sites. each rod will be lengthened, then they'll 'close her up'. Because of the 'excitement' she caused at her initial VEPTR surgery, Dr. Sanders is going to reserve a PICU room and he wants her to spend the night after the lengthening. If she doesn't need the PICU room, he'll move her to regular 'floor' room, just to monitor her overnight. Since the surgery is usually done on an outpatient basis, I'm pleased with his cautionary approach. Sumana is not the 'average' kid (in more ways than one!!)

So, we also threw in a brace check up and PT for good measure. In between appointments we met some homeschooling friends at the Strong Museum of Play. Unfortunately, I forgot my camera (AGAIN!!) I'm sooo bummed! Sumana had such a blast. She LOVED shopping at the mini-Wegmans and checking herself out (barcode beeper and paper receipt included!!) She also LOVED the Berenstein Bear section. She reads those books EVERY night before she goes to sleep. I often have to take them away from her so she'll go to sleep! She got to do leaf rubbings, egg processing, jumping contests and played a make-shift xylophone. All in the Berenstein bear area.

Well, a couple of prayer requests. In the midst of our running around yesterday, I was not feeling well. I've been fighting something off on on for days now. Even today I'm not feeling much better. It's a low-grade fever, cough, sore throat . . . yuck! Just what Sumana doesn't need! So, pray that she stays healthy and I get better FAST!

Also, please pray for our little friend, Giana. She has her VEPTR surgery on Thursday. She's got lots of complicating factors, beside the fact that she's only 15 months old! Dr. Sanders will be doing her surgery as well as Dr. Campbell (the c0-inventor of the VEPTR). She and Sumana have a special bond . . . two very special little girls. I know the Bisnett family would treasure your prayers. Here's their caringbridge site: http://www.caringbridge.org/visit/ourgirl/journal/1 or http://thebisnetts.blogspot.com/2009/10/and-breathejust-breathe.html

1 comment:

  1. Oh, boy! I know I'm supposed to pray that Sumana doesn't catch what you have, but I'll be praying that it doesn't get any worse for you too! I know how hard you push yourself! YEAH for no more Rochester appointments for a while! That's such a long drive! Take care of BOTH of you!!!