Well, Miss Kristen (Sumana's PT), has a great plan. From now til surgery, Sumana is going to work more and more on strengthening exercises. She already has made tons of progress, but now Sumana understands the importance of being strong before surgery. We're hopeful that all she does NOW will ultimately help her AFTER surgery. It certainly can't hurt!
Tomorrow morning, Sumana has her CT scan and neurosurgeon appointment. If all looks good, we should be able to schedule her VEPTR surgery. For those of you who are new to the blog, please scroll down to see a picture of the device.
After her CT scan, we're going to go visit Giana and her mom in the PICU. She's the 9 month old who's recovering after having her VEPTR removed. I'm looking forward to meeting someone who's a little further down the road than I am. I hope I can encourage her, too!